Hey, I'm Jason. I'm a chronically-ill-super-freedom-loving-medical-self-journalist.
So you’re not type O? But you’d love to give a transplant to me? Here’s a story at NPR that shows how altruism, a database, and 16 people made a tremendous change in the world in one small day.
Another interesting take on how to make kidney donations easier — no, you don’t have to go to China — in Saturday’s NYT. http://tinyurl.com/mts6az
Thanks for touching base, I’ve been meaning to email you as well. I saw your blog listed on Bill Peckham’s site and have been following you as well!
I’m so impressed with how bravely you’ve just put it all out there, asked that hard question (will you be tested for me?)…and so eloquently. I’ve really struggled with how to reach out to people in a way that doesn’t turn them off or tune them out…but still be persistent (and not loose hope)…it’s a really hard line to walk! I am inspired by your ability to just put it on the table.
The whole sensitivity thing is really a legitimate struggle, more so than finding a donor (there have been 8 people tested for Darren this time around, and it only took one person being tested for his first kidney). I’ve not heard of the marrow donation…that sounds so much better than the desensitization programs I’ve researched. Where are they doing that? I agree, addressing the sensitivity issue has to be pushed…humm, the wheels are turning…
I’d love to collaborate with you somehow, not sure how…but the door is open. That’s the first step, right!
My best to you, even though I’m on the other side of the issue…I know the struggle. Keep fighting the fight.
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